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This Is Not About Me

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Still, it took a lot of practice before I transitioned from symbols to typing, and then typing complete sentences. When I really got the hang of it and was able to share so much about my body and what I was feeling, it was exhilarating and beautiful. JZ: Buster is a Cane Corso, which is an Italian breed of Mastiff. He was a trained service dog, who is now retired. Buster supported me throughout my day at school—providing deep pressure by physically laying his head or whole body on me, attending to me when I was upset, stopping me from running into traffic, and alerting staff when I needed help.

It was too late. She was pushing forty, had a daughter who was pregnant herself. She had a nice house, a cat and a washing machine of sorts to care for. But it happened. Thinking Person’s Guide to Autism (TPGA): You are now pursuing a Master’s degree. Can you talk about why you chose this educational path, and your career goal? In some ways the move was easy: just clothes and toys enough for one case. Not so much as a kettle. Rose said Eddie wasn’t well and needed looking after and she was a bad wife for letting him down, but she knew that already. It was a horrible choice, certainly, but not a hard one. She’d put in twenty-two years already. After all that time, it must have seemed unlikely that more would make anything any better. Rose was his sister, doing what a sister would. Or maybe she just resented being dumped with his care. In bed, there were no distractions. Even if I couldn’t hear them, I knew they were there, through the wall, arguing. Sooner or later, something would smash.

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TPGA: Tell us about Buster, the large dog who makes an appearance in the film. What kind of a dog is he, and what was his role in supporting you? The idea here is that Daphne is just too focused on herself to see that Robert really can not afford to come to the movie. Film ‘Making Sense’ starring people with disabilities representing 5 senses to premiere at Boston SciFi

Filmed in an observational style, This Is Not About Me gives a glimpse into Jordyn’s daily life. The documentary takes us to Jordyn’s schools and involves interviews with teachers that worked closely with her. Jordyn guides us through difficult moments in her childhood. Piece by piece, her story reveals how professionals misunderstood her and pushed her deeper into a broken education system. Despite this system, Jordyn thrived, but her story is not one in a million. There are thousands of students like Jordyn who have something to say. And he didn’t smile, exactly, but he looked okay. Calmer. Business concluded, he left the kitchen to the sound of his own feet on the lino and she tidied up. Nobody cried. I waited on at the open door, my toes freezing, looking out beyond next door’s garden. The stars were showing over the pigeon loft and our window was light-filled boxes on the grass. I was working something out as I stood there, nobody moving me on, my mouth hanging open wide enough to catch flies. He had done it on purpose. I thought about the pot, the food inside. He knew it was ours and he’d thrown it away. He had known full well. There’s nothing out there, he says. Now sit. Sit there when I tell you. He points at the settee. Just bloody sit. The repetitive motion and rhythm of running definitely helped to stimulate and regulate my body so I could handle more of the sensory input I was processing each day. I have no memory of the move. It occurred to me years later that maybe he had sensed it coming, that fear was why he had shut us together. That he was clinging, trying to terrify one or other of us into stasis, obedience, God help us, affection. On the other hand, maybe not. Whatever the intention, if there was any at all, all he had done was make things pressing. She might have gone to her mother’s, her sister’s, to all sorts of places if it hadn’t been for me. I am under no illusion it was a choice. There was nowhere to take us, but we had to be together. There was nowhere to take us, but we had to go.The idea here is that it is a kind and generous act for the gluten-intolerant guy to not disrupt the celebration. False Eddie, she says, from the other side. The handle rattles and stops suddenly. Eddie. We’re just going to my mother’s. Open this door. Jordyn Zimmerman obtained her bachelors degree in Education Policy from Ohio University and her Masters of Education at Boston College. Having experienced special education programs while in school herself, Jordyn hopes to become a catalyst for change. As a nonspeaking student with autism who was denied access to effective augmentative communication (AAC) until she was 18, Jordyn has personal experience challenging the educational status quo, which is featured in the 2021 documentary, This Is Not About Me.

In my memory, it opens like a horror film, like a gun going off with smoke furling in its wake. Maybe it was foggy, maybe just his breath coming in from the cold. At any rate, the door opened and he lurched into the hall, leaving it bouncing on the hinges behind him, the whole of the dark outside rushing in like water. And there I was in my night things, holding a spoon, staring.

TPGA: You mentioned that people didn’t know what inclusion was when you started college. Can you explain what inclusion really means? He came home any time of day with a stumble in his step, his voice awkward, his hands not able for his shoelaces. And when he did, afternoon or not, it was time for me to go to bed. He was in no fit state, my mother said. Off you pop. It was only when her attempts led to baby throwing up enough blood to coat her top sheets, twice, that she was let stop. Jordyn Zimmerman (JZ): As you see in the film, I had many experiences which made me who I am today. I want to change the system so students do not have the difficulties I faced with obtaining an education and/or accessing effective communication. I am also very passionate about every student exercising their right to a truly inclusive education.

Zimmerman worked hard to achieve her B.A. in education policy and proceeds to influence not only educators, therapists, and parents, but other individuals who have nonverbal autism themselves. She is a successful and admired young woman who continues to smile, laugh and be a marvelous woman to be around, all while working to improve the education system for other nonverbal students. In her current work as a education policy advocate, Zimmerman urges educators to be more aware of how they talk around their students, because children can figure out exactly what is being suggested about them, regardless of their presumed communication levels. TPGA: Can you talk about the work it takes to learn to communicate through AAC? (I ask because some people assume AAC is an instant miracle.) A breakdown of Zimmerman’s life through her school years indicates that many of her teachers did not have the expertise or the resources needed to help her complete her education. However, as we see in the film, once she was finally connected with a group of educators who had the resources, patience, and skillset to introduce her to ways of communication outside of society’s “norm,” her life changed dramatically for the better. These new instructors paid attention and helped Zimmerman get to exactly where she is now. They did not give up on her, but most importantly, Zimmerman did not give up on herself. She ultimately completed her high school education and went on to attend Ohio University and then Boston College for graduate school.Subject of Film Jordyn Zimmerman, Also Serves on RespectAbility’s National Disability Speakers and Training Bureau Nothing was insured, of course. He didn’t believe in insurance. He said insurance was for mugs. Instead, he took what was left of the housekeeping from the tin in the pantry and consoled himself as he saw best fit. Given time to herself, my mother made a decision. We all found out what it was soon enough. The point of the expression, “It is not about you.”, is the implication that it is about somebody else (usually the speaker) — that what matters the most is some issue someone else has. As a rule, when someone says this, the “you” person does have a relevant issue; if the objection is correct, the point is that that issue is not as important as the issue the speaker has. Conversely, it can just mean that the “you” person is being selfish. (It is not that surprising if the speaker is actually being selfish (nor if the other party is being selfish and falsely believes that the speaker is being selfish).) While on her college campus after a FaceTime call with her mom, Zimmerman is asked if she likes school. She shrugs her shoulders, holds for a beat and then types on her iPad ‘I like school, but sometimes not the people.’ Many people can resonate with those who have been portrayed to be cast as outsiders in society. This theme in the documentary will resonate with many viewers. TPGA: What messages would you like to give to autistic students who don’t feel heard, or understand, or supported, as you once were not?

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